20 Years: A Labor of Love

Freddy and I hadn’t exactly been connecting since the beginning of September. Once school starts, life becomes more hectic. By the time homework and dinner are done, my communication skills are minimal… almost non-existent.

Blessed & Giving Back: The End of leukemia

But when I saw kids with brain tumors and babies who were sick, I became grateful that my child only had leukemia. My perspective changed and I felt blessed, his fight was not as difficult.

My Heart: Joey & leukemia, Part 4

I no longer had Freddy to get me coffee, and that was a problem.  No more husband to hold my hand and be my punching bag.  There isn’t much sleeping going on, and I just needed that cup of caffeine first thing in the morning. 

Room With A View: Joey & leukemia Part 3

leukemia isn’t like a lot of cancers.  A victim usually goes into remission after five weeks of getting beaten with chemotherapy on an almost daily basis.  His particular leukemia,  acute lymphoblastic leukemia (ALL),  has an excellent prognosis, but all leukemias have a high risk of coming back. 

leukemia Diagnosis & Joey: Part 2

After 2 hours in the ambulance, we arrive at the Medical University of South Carolina Children’s Hospital.  I honestly don’t remember much about that arrival, except the greeting by the nurses on the floor.  They were expecting us.

Sunset Beach: Love, Memories & Piece of My Heart

My daughter asked me if I was going to write about this and I said “NO”. It wasn’t something I really wanted to share. But I am supposed to be writing about life and this is real life. My world is pretty darn good, but sometimes it sucks. Right at this moment as I am sitting here trying to sell 13 years of memories – life totally SUCKS.

Wonder: The Movie, Auggie and My Son

Last November, my Down Syndrome mom group and I, took our kids to see the movie Wonder. The moms were in one row and our kids were in the row in front of us. The sounds of sniffles were consistent and I knew where they were coming from. I didn’t want to look because everyone needs their privacy, but I knew because I was part of that sniffle party.

Time Doesn’t Stand Still

Time … where does it go? I have been saying that more and more lately to myself and my friends on Facebook. It isn’t life that is moving fast – it is us, and we need to slow down so we can REALLY just enjoy the moments.