Disability Pride Month

How did I not know there was a Disability Pride Month? Apparently, it’s been in existence since 1990, has a flag (above), and there are parades celebrating it. The lack of promotion goes hand in hand with the marginalization and lack of government r

Joe Riguzzi: An Interview and A Duet

October is Down Syndrome Awareness Month, and it’s November 1, but hey, any day is a good time to show the world what a blessing it is to have this child. I have written so much about him and wasn’t sure what I could say or do differently, but then the universe spoke.

My Little Man; Joe Riguzzi

As we are nearing the end of Down Syndrome Awareness Month, I feel compelled to write about my guy. Lord knows, he is my favorite subject. What’s it like to live with my little man?

leukemia & Joey: The Story of his Diagnosis

How does one begin to tell the story of the time their child was diagnosed with cancer?   People usually call leukemia – leukemia.  They say it like it is a disease unto itself, but it is cancer.  It is a cancer of the blood.  

A Special Movie at a Special Theater

I didn’t know whether to laugh or cry through most of this movie but crying won out. Not because it was a sad movie, it was a beautiful movie that evoked all emotions. But when you watch a movie thinking this could be your child, it is going to hit home.

Graduation Day: The End of an Era

The alarm went off at 7:55; my heart jumped and the tears popped into my eyes. My head told me to get up and move because I don’t want to be crying all day.